Frontotemporal dementia (FTD) is a complex and challenging disease. Unlike other forms of dementia, such as Alzheimer’s disease, which primarily affects memory, FTD primarily affects the frontal and temporal lobes of the brain. These areas control behaviour, personality, language and decision-making. This difference is very important to caregivers and family members. The symptoms and progression of FTD differ significantly from other types of dementia.

The main symptoms of frontotemporal dementia

One of the first signs of FTD is a noticeable change in personality and behavior. Individuals may become socially inappropriate, lose the ability to be compassionate, or exhibit impulsive behavior.Unlike Alzheimer’s disease, in which memory loss is often the first symptom, FTD patients can still clearly remember past events. However, they have difficulty with everyday social interactions.

FTD is also characterised by speech difficulties. Some people may have difficulty speaking or understanding language. They may use words incorrectly, have trouble forming sentences, or lose the ability to read and write. This form of dementia can also lead to movement disorders, such as tremors or lack of coordination, although these are less common.

Differentiating FTD from other dementias

It is important to distinguish FTD from other types of dementia as the approach to care may differ. While Alzheimer’s patients often need memory aids and structured routines to help them navigate daily life, FTD patients may need support with coping behaviors and communication.

For example, patients with FTD cannot recognize inappropriate social behavior. Caregivers need to gently guide them, help them understand social cues and respond appropriately. Understanding that these behaviors are symptoms of FTD, not intentional actions, can help caregivers approach these situations with more patience and empathy.

What carers should know

As a caregiver, it is important to watch for specific behaviors that could indicate disease progression. Sudden personality changes, impaired social functioning or increasing difficulty with language are signs that FTD may be progressing. Regular medical checkups are essential to monitor these changes and adjust care plans accordingly.

In addition, safety should be a priority. Due to the impulsive behaviour often associated with FTD, persons may be at risk of accidents or injuries. Caregivers should ensure that the home environment is safe and consider supervising or limiting activities that could lead to injury.

The importance of a care plan

Developing a comprehensive care plan is essential to managing FTD. This plan should include communication strategies, coping behaviors, and daily routines. Caregivers should work closely with health care professionals to tailor the care plan to the person’s needs and ensure that it evolves as the disease progresses.

Incorporating activities that stimulate the mind and body can also be beneficial. Although FTD affects behavior and speech, many patients still enjoy hobbies and activities that can give them comfort and a sense of normalcy.

At Atena , we understand the unique challenges of caring for a person with frontotemporal dementia. We are here to help you manage the complex issues of FTD with compassion and professionalism. Whether you need assistance with daily tasks or specialized care, Atena is committed to helping you and your loved ones navigate this journey with dignity and respect. Contact us today to find out how we can help.